About PCA Chat

This is a blog about PCA, which stands for Posterior Cortical Atrophy. PCA is a rare variant of Alzheimer's Disease which affects the visual functions of the brain. I was formally diagnosed as having PCA in my early 60s and have now been living with the condition for the best part of 10 years to date.

I wanted to create this blog to share strategies that may be useful for me and others similarly afflicted for coping with the bizarre effects of PCA - for example ways to cope with using telephones, computers, diaries, as well as reading and answering printed letters/mail, shopping, public transport, dressing oneself etc and generally getting through life in a world that is not usually accomodating for someone who has visual problems but is not blind in the conventional way.

I am a UK resident and have support from my local National Health Service Primary Care Trust, my local Alzheimer's Society group, aswell as a PCA support group at the National Hospital for Neurology & Neurosurgery at the University College London Hospitals and I hope that this blog will be useful for anyone looking for support and advice from anyone who knows about this condition.